OR
Your Memberships & Subscriptions
Download the free Kindle app and start reading Kindle books instantly on your smartphone, tablet, or computer - no Kindle device required.
Read instantly on your browser with Kindle for Web.
Using your mobile phone camera - scan the code below and download the Kindle app.
OK
Running The Coast For A Cure: One Man's Journey For His Niece With Sturge-Weber Syndrome Kindle Edition
In 2014, Al DeCesaris set out on a 1,935-mile solo run from Lubec, Maine to Key Largo, Florida. He ran to bring hope to his 10-year-old niece Jenna who suffers with Sturge-Weber Syndrome, a rare and life-threatening neurological disorder. He ran to create awareness and raise funds for medical research so a cure can be found.
For three consecutive months, he battled the rigors of the road, endured numerous injuries, encountered wild animals, and narrowly escaped getting hit by more than a few reckless drivers. Yet, he also experienced the generosity of strangers, had heart-warming interactions with families affected by this devastating disorder, and came to realize - with purpose, determination, and belief - even the seemingly impossible can be achieved.
Running The Coast For A Cure is one man's journey to make a difference for his niece. Told with humor and warmth, Al candidly captures the adversity he faced and the joy he experienced as he ran close to a marathon a day through 14 states down the East Coast. His journey of love and hope will have you running with him, and leave you inspired.
- LanguageEnglish
- Publication dateJune 2, 2016
- File size65764 KB
Editorial Reviews
Review
"I stand in awe of this book. A heartfelt and brave accomplishment of a hero running for his hero! A gem to be treasured." - Helene Neville (One On The Run), Author & World Record Runner
"Running The Coast For A Cure isn't just a book. It's a mission. One man trying to help his niece by saving her life. Now who can't get behind that?" - Brad Meltzer, bestselling author of The President's Shadow
From the Author
I was determined to make a difference in Jenna's life and in the lives of all those suffering with this devastating disorder. Thus, on the heels of my 2013 cross-country bike ride, which I chronicled in my book, Crossing America For A Cure: A Bicycle Journey Of Inspiration And Hope, I began training for a new charity event - a solo athletic endeavor that would have me running close to a marathon a day through 14 states down the entire East Coast.
I suppose I could have come up with something a little less arduous (no doubt, my legs would have appreciated it), but I wanted to do something unique and eye-opening to create as much awareness and raise as much money for Sturge-Weber research as possible. My plan was to run (walk ... and even crawl, if necessary) on average 22 miles a day for three consecutive months from Lubec, Maine to Key Largo, Florida. Picking up each day exactly where I left off the day before, I would cover every mile (every foot actually) down the coast.
Now, it's no secret I've never been much of an athlete. And I didn't have the running experience that would lead one to believe I could accomplish something this ambitious. In fact, even though I planned to run close to a marathon a day, I'd never actually run a marathon. Still, I have something within me that I knew would make this seemingly impossible task achievable - purpose. My purpose is my desire to help my beautiful young niece Jenna live a better life. For her and because of her, I am inspired to fight Sturge-Weber Syndrome on her behalf.
From the Back Cover
About the Author
In 2013, he bicycled solo 3,088 miles from Santa Monica, California to Ocean City, Maryland in honor of Jenna and subsequently published a book about his ride, Crossing America For A Cure: A Bicycle Journey Of Inspiration And Hope. In 2014, he took on another incredibly challenging endeavor, this time on foot. Running solo close to a marathon a day for three consecutive months, he covered 1,935 miles as he made his way from Lubec, Maine to Key Largo, Florida.
Through his athletic endeavors, charitable events, and books, Al has created considerable awareness about the disorder and helped raise significant funds for medical research. His efforts have brought hope to his niece and those suffering with Sturge-Weber Syndrome and have inspired others to help those in need.
To further the efforts to find a cure, Al is dedicating all profits from the sale of his "For A Cure" books to Sturge-Weber Syndrome research.
Product details
- ASIN : B01GIZNIJK
- Publication date : June 2, 2016
- Language : English
- File size : 65764 KB
- Text-to-Speech : Enabled
- Screen Reader : Supported
- Enhanced typesetting : Enabled
- X-Ray : Not Enabled
- Word Wise : Enabled
- Sticky notes : On Kindle Scribe
- Print length : 356 pages
- Page numbers source ISBN : 0692687599
- Best Sellers Rank: #3,794,419 in Kindle Store (See Top 100 in Kindle Store)
- #2,266 in Running & Jogging (Kindle Store)
- #7,548 in Running & Jogging (Books)
- #56,348 in Memoirs (Kindle Store)
- Customer Reviews:
About the author
For over a decade, Al DeCesaris has volunteered his time and devoted tremendous effort to fighting Sturge-Weber Syndrome, a rare and devastating neurological disorder that afflicts his niece Jenna. Through innovative charitable events, extraordinary athletic endeavors, and his "For A Cure" books, he has created significant awareness about the disorder and raised critical funds for medical research.
CHARITABLE EVENTS:
Al's crusade began not long after the birth of his niece. Recognizing the importance of raising funds for medical research, he co-organized an annual concert and auction fundraiser called Bands on the Bay. Over its 10-year run, the event raised over one million dollars for the Kennedy Krieger Institute and helped fund research that led to the ground-breaking discovery of the cause of Sturge-Weber Syndrome.
ATHLETIC ENDEAVORS:
Even with the success of Bands on the Bay, Al couldn't help but think there was more they could do to further the efforts to find a cure. More he could do.
In 2013, he set out on a solo coast-to-coast bike ride in honor of Jenna. Pedaling on average 75 miles per day, he rode from Santa Monica, California through 14 states and over 3,000 miles before completing his remarkable Crossing America For A Cure bicycle journey in Ocean City, Maryland.
The following year he took on another challenging endeavor, this time on foot. Without a support team and with no marathon experience, Al covered on average 22.5 miles per day for three consecutive months during his Running The Coast For A Cure charity run, which took him from Lubec, Maine down the entire East Coast to Key Largo, Florida - 1,935 miles in all!
In 2017, Al returned to the road for an exciting endeavor which had him hiking the historic Camino de Santiago (Way of St. James) across Spain to the Cathedral of Santiago de Compostela before reaching his final destination of Cape Finisterre overlooking the Atlantic Ocean. Each day of his 31-day, 555-mile Hiking Camino de Santiago For A Cure journey of hope was dedicated to a different person living with Sturge-Weber Syndrome.
Through his extraordinary athletic endeavors, Al has created awareness about Sturge-Weber Syndrome in both the United States and Spain, raised critical funds for medical research, and brought hope to his niece Jenna and countless others living with this devastating disorder.
BOOKS:
During and after his charity ride and run, Al wrote about his experiences on the road: the things he saw, the emotions he felt, the challenges he faced and of the extraordinary people he met along the way. His books, Crossing America For A Cure: A Bicycle Journey Of Inspiration And Hope and Running The Coast For A Cure: One Man's Journey For His Niece With Sturge-Weber Syndrome, are honest, entertaining and, above all, inspirational.
To further the efforts to find a cure for Sturge-Weber Syndrome, Al is dedicating all profits from the sale of his "For A Cure" books to medical research. The books are available in Kindle and paperback on Amazon.
TALKS:
Al is a public speaker who is extremely passionate about the charitable work he's involved in and is always willing to share his story of advocacy and service with others. Using his extraordinary athletic endeavors as examples, Al delivers an uplifting message of inspiration and hope, and demonstrates how we all have the power to make a difference through charitable work. His audiences are motivated and empowered to find their purpose, go the distance for those in need, and create positive change in the world!
Customer reviews
Customer Reviews, including Product Star Ratings help customers to learn more about the product and decide whether it is the right product for them.
To calculate the overall star rating and percentage breakdown by star, we don’t use a simple average. Instead, our system considers things like how recent a review is and if the reviewer bought the item on Amazon. It also analyzed reviews to verify trustworthiness.
Learn more how customers reviews work on Amazon-
Top reviews
Top reviews from the United States
There was a problem filtering reviews right now. Please try again later.
Al does a great job in Running The Coast in sharing those times that were both exhilarating and those that were both physically and emotionally draining. To me what it showed most is his commitment to his Niece and helping her have a better life. Al is a one of a kind person and this is a one of a kind must read book! Great job Al!